Individuals with Apert syndrome require numerous surgeries throughout their lives. As children, these often include specialized procedures to separate their fingers/toes and to address fusion of the bones in their skull. Recovering from these surgeries can be a long and uncomfortable process and sometimes means “thinking outside the box”.
We talked to parents who have been through it all before and asked them to tell us what items were crucial during their child’s hospital stay and recovery at home. It is our goal to provide customized Whooo’s Brave Kits with these items to help take some of the stress off of caregivers and to brighten the child’s day.