Because it is so rare, our stories connect us as a "family". Here are just some of the beautiful individuals living - and thriving - with Apert syndrome. Click the photos below to visit their personal websites and read more about each child's journey. 

*If you would like to be featured on this page, please visit "Share Your Story". 

Our mission is to be a beacon of hope for families affected by Apert syndrome
by providing support, resources and inspiration throughout their journey.

apertOWL Inc.    PO Box 356 Prospect, KY 40059    info@apertowl.org

© 2016 apertOWL Inc. 

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