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Individuals with Apert syndrome require numerous surgeries. These often include specialized procedures to separate their fingers/toes and to address fusion of the bones in their skull. Recovering from these surgeries can be a long and uncomfortable process and sometimes means “thinking outside the box”.


We talked to parents who have been through it before and asked them what items were crucial during their child’s hospital stay and recovery at home. It is our goal to provide customized Whooo’s Brave Kits to help take some of the stress off of caregivers and to brighten the child’s day.

Since 2014 we have sent Whooo's Brave Kits to children and young adults of all ages across the world - including Ireland, Australia, Japan, the Netherlands and more! All of the items included in our kits are donated in-kind or purchased with donated funds. We are so grateful for the support of generous individuals, groups and corporations that make this possible!

Our mission is to be a beacon of hope for families affected by Apert syndrome
by providing support, resources and inspiration throughout their journey.

© APERT OWL Inc.    PO Box 357 Prospect, KY 40059